Research and Data Services

Data and Statistics Support Services

Datasets, Software and Servers

UVA Software and Platforms

REDCap

UVA Health has a REDCap instance. REDCap is a secure web application for building and managing online surveys and databases. REDCap can be used to collect and manage virtually any type of data, including 21 CFR Part 11, FISMA, and HIPAA-compliant environments. To learn more and view support options, visit UVA Health/iTHRIV REDCap Team. Cap"

Qualtrics

UVA provides access to Qualtrics, a Web-based tool for creating online surveys. Qualtrics allows for robust survey composition with a multitude of question types, complex survey flow patterns, and the ability to complete NetBadge authenticated surveys. The Qualtrics Research Suite provides a separate portal for highly sensitive data (e.g. HIPAA-protected data types) as well as an interface for moderately sensitive data.

SPSS

UVA provides access to IBM SPSS Statistics to its faculty, staff, and students. Downloads are available for Windows and Mac. See this guide on UVA's SPSS from Research Data Services + Sciences for more on installing SPSS. Need help installing or downloading? Contact the Research Software Support team for assistance.

Multi-Schema Information Capture (MuSIC)

The Multi-Schema Information Capture (MuSIC) framework was created at UVA to allow rapid and flexible development of Web-based custom research databases for a variety of purposes. Research databases with a generic Web user interface can be developed rapidly within the MuSIC framework and then customized to yield an optimal online display. 

OnCore

The UVAHS Cancer Biomedical Informatics Group administers OnCore, a commercial Web application that coordinates the data collection and staff workflow across all UVA oncology clinical research teams. OnCore is used to create electronic case report forms (eCRFs) for oncology research. 

UVA Remote Apps

This service is directed toward students. They can use it to run licensed software like Minitab, MATLAB, Rstudio, etc., remotely on your computer (replaces the UVA Hive). Read more from ITS about Remote Apps.

UVA Software Gateway

See all the software titles available to you at UVA.

UVA Computing Environments

Working on your IRB or need to know more about data storage options for your UVA Health Research project? Consult this Guide via the Research Concierge Portal (UVA only)

Ivy

Ivy is a secure computing environment for UVA researchers consisting of virtual machines (Linux and Windows), Domino Data Lab, and the Hadoop/Spark MapReduce environment. Researchers can use Ivy to process and store sensitive data with the confidence that the environment is secure and meets HIPAA requirements. Learn more - Research Computing - Ivy

Rivanna

Rivanna is UVA's High Performance Computing (HPC) system. As a centralized resource it has hundreds of pre-installed software packages available for computational research across many disciplines. Currently the Rivanna supercomputer has over 8,000 cores and 8PB of various storage. Learn more - Research Computing - Rivanna

Secure Data Storage: Servers Approved for PHI (UVA only)

View approved sites for storing Protected Health Information (health data containing HIPAA identifiers) for research. View the Standard or contact UVA Health Health Information Technology for more information.


OneDrive (Microsoft 365)

OneDrive is an online cloud storage service that integrates with Microsoft 365 so users can access Word, Excel, PowerPoint, OneNote, and other documents in one place. Users can share files and simultaneously edit collaborative documents online. UVA users receive 5 terabytes (TBs) of storage (no increases allowed).


UVA Box

UVA Box is a cloud-based storage and collaboration service that gives eligible members of the University community the ability to access, store, and share up to 1 TB of non-sensitive/moderately sensitive University files securely—anywhere, anytime, on any device. Read more - Information Technology Services

UVA Clinical Datasets

See these guides:

Patient data for research: current and planned tools (UVA only)

How do I access UVA health records for research? (UVA only)

Additional Resources:

TriNetX Live (UVA only)

TriNetX Live is a cloud-based platform that allows UVA researchers to explore de-identified patient cohort data. Because the health data is presented in aggregate without any patient identifiers, human subject ethics (IRB) approval is not needed in order to query health data through this interface. TriNetX Live makes it simple to build study criteria out to refine research design and assess protocol feasibility using real UVA Health Systems patient data. Click here to learn more about TriNetX and how to request an account.

UVA Clinical Data Repository (UVA only)

The Clinical Data Repository (CDR) is a data warehouse containing de-identified clinical and administrative information on over 1 million patient and 5 million clinical encounters at UVA prior to June 2017. It provides authorized researchers, clinicians, and students with direct access to detailed, flexible, and rapid retrospective views of de-identified clinical and financial patient data.

Finding Datasets

Selected Health Sciences Datasets

See this guide to selected health-related datasets, both freely available and through subscription by the UVA Library.

Additional Recommended Datasets

More data sources, grouped by subject areas including census and demography, economic and finance, education, media and communication, and more.

Dataset Search Engines and General Data Repositories

Finding Datasets Related to Publications

  • PubMed - perform a search like your topic AND (dataset* OR database OR registry). This may identify publications that reference datasets in the title or abstract of the PubMed record.
  • PubMed - perform your search then try the Associated Data filter the left menu. This will limit your search to citations with related data links in either the Secondary Source ID field or the LinkOut–Other Literature Resources field. Note, however, that this search will also retrieve other types of "data" associated with the article like tables.
  • PubMed Central - use has associated data[filter] to find all articles with any type of data section described below (or choose one of the following):
  • Web of Science (UVA only) - perform a search on your topic and then choose Associated Data from the left Filter menu to refine your results
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